Thursday, July 30, 2015

How I Conquered IBD - An Introduction


















I've had Ulcerative Colitis for a long time. My symptoms started when I was 13, 26 years ago. It would be another 6 years until I was diagnosed. Even then, it didn't take long for me to realize that no one understands Inflammatory Bowel Disease. Of the six gastroenterologists I was treated by over a 25-year period, most of them caring people whom I enjoyed interacting with, all of them had almost identical plans of action.

Meds. Tests. More meds. More tests. LOTS of appointments.

I went along with this for much longer than I felt I should. My intuition began to assure me every time I went to see them I was wasting my time. Because every medicine they insisted I needed to function in society did nothing for my colitis. Many times, it made it worse. All times, it made ME worse, by side effects and an undeniable emotional toll.

The last specialist I saw, four years ago, was not a nice and caring person like the others. He was abrasive, inattentive and arrogant. I already knew all the medicines he wanted to try would not work. I explained I could not tolerate medicines and asked him what I could change about my lifestyle and diet to control the symptoms and hopefully cause a remission. I had noticed that my UC went away during pregnancy and breastfeeding, and it had given me the idea that if I changed my body chemistry in some way, I might be able to control the disease naturally.

He told me, flat out, that it was impossible. I could do my own research, but I would be wasting my time. I left his office very discouraged. After three months, I received a letter saying that he was refusing to treat me because I had not made another appointment and so I was being considered an irresponsible patient.

My discouragement turned to indignation. What had he offered me that I should be excited about going back to his office? It seemed like his goal was to make sure he had enough patients walking through the door to make money, not making sure those patients were able to conquer their disease and live a normal life. 

And so I became my own advocate. I researched, scouring the internet for information about treating ulcerative colitis naturally. It was hard to come by. UC and Crohn's are notoriously hard to manage. But finally, I came across an obscure little article, written by a natural doctor in medical language that was admittedly very hard to read. It was an article on how to treat UC with supplements and diet. I didn't understand all of it, but I wrote down every supplement and how much I was supposed to take, jotted down each piece of advice concerning diet and exercise, and from that moment on made it my new lifestyle.

I have been in remission for almost all of the past four years, starting TWO WEEKS after I found that article. The only flare-up of UC I have had was related to the additive "carageenan" in my almond milk. As soon as I stopped drinking that brand, I was back in remission. I have learned more since then, and added other measures to my way of life that keep me from sinking back to where I once was, and I have been able to address other autoimmune issues and metabolism issues in my body, and as a result I have come to a place where I am almost at peace with my body, feeling good more days than I don't, having energy to do the things I want to do and need to do as a busy homeschooling mom and a writer.

It's time for me to share my story. Others are probably out there, being told time after time that it is impossible for them to manage their own disease. Suffering on meds, having tests that drain the life out of them and come at risk. I don't want anyone to have to live that way. So I'm telling you exactly what I did to conquer IBD. I'll be as brief as possible. I'll use language anyone can understand, even scared 13 year olds who have just started having symptoms or have been newly diagnosed.

You can conquer this disease, and the emotional toil that goes along with it in many cases. You can feel better on a long-term basis. It will involve some trial and error and a few different supplements, but in this day and age, they are easy to obtain.

Chances are, I will eventually publish a short book on this subject, going into a little more detail. It's a passion of mine to help others know they can take charge of their own health in cases where our medical system comes up short. For those of us living with autoimmune diseases, often our best course of action is a complete lifestyle change, and an adjustment in our thinking. It won't be easy.

But it's possible. More to come.

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